Resource Center

Shepherd Center in Atlanta---- A local institution with a PPS clinic. Also noted for strong support of APPA

 

Rehabilitation Medicine at the Emory University School of Medicine headed by Dr. Dale Strasser

 

http://www.ninds.nih.gov/disorders/post_polio/post_polio.htm to see article on Post Polio. This is part of the National Institute of Neurological Disorders and Stroke web site, www.ninds.nih.gov/, which has lots of good information.

 

International Post-Polio Support  www.ippso-world.org/

 

Post-Polio Health International: www.post-polio.org

 

Access Now: www.adaaccessnow.org

 

American Association of People with Disabilities (AAPD): www.aapd.com

 

Medline Plus (Polio and Post-Polio Syndrome)
www.nlm.nih.gov/medlineplus/polioandpostpoliosyndrome.html]

 

Mayo Clinic (Post-Polio Syndrome) www.mayoclinic.com/health/post-polio-syndrome/DS00494

 

Southern Arizona Post-Polio Support Group newsletter:www.polioepic.org and www.polioecho.org

 

www.postpoliobransongoers.com  Annual trip to Branson, Missouri!

 

http://www.georgiaadrc.com/ - Georgia's Aging and Disability Resource Center

 

 Agewise Connection 

Atlanta area agency on aging. Resources for transportation, housing, in-home help, and more.

http://www.aadd.org/ and http://www.unlockthewaitinglists.com/ -  Atlanta Alliance on Developmental Disabilities

 

http://www.1gooddeed.org/ - One Good Deed - transportation and mobility aids

 

 Atlanta Regional Commission  A georgia government site with info and links to agencies, programs and assistance

 

Conemaugh Health System has the John P. Murtha Neuroscience and Pain Institute which has a post-polio clinic. They also produced the Yoga for post-polio patients DVD which some of us got at the PPHI conference. Go to http://www.conemaugh.org/template_article.aspx?id=4436 and email them about the DVD.

 

There are a number of Facebook pages related to PPS. If you type Polio in the Search book, it will list all the pages. Here are two:

 

  1.    http://poliotoday.org/ - has a Facebook page as well

  2.    FB page: Post-polio syndrome

 

Center for Independent Living (CIL) - www.silcga.org

Pat Puckett, Executive Director, 770-270-6860

 

World Institute for Disability - http://wid.org/

 

Social Security Disability Resource Center -http://www.ssdrc.com/

Marketplace

Bookshelf

 

Bookshelf

The following books can be purchased at Amazon.com

 

·  Polio:  An American Story by David M. Oshinsky
   ***Winner of the 2006 Pulitzer Prize in History***
   Published by Oxford University Press; $18.90

 

·  Living with Polio:  The Epidemic and Its Survivors
   By Daniel J. Wilson; $18.27

 

·  Splendid Solution:  Jonas Salk and the Conquest of Polio
   By Jeffrey Kluger; $10.38

 

·  Polio and Its Aftermath:  The Paralysis of Culture
   By Marc Shell; $30.77

 

·  Walking Fingers:  The Story of Polio and Those Who Lived It
   By Helen D’Orazio; $12.32

 

·  Polio:  A Dose of the Refiner’s Fire:  Surviving Polio
   By Jeane Curey Dille; $12.95

 

·  The Cutter Incident:  How America’s First Polio Vaccine Led to        

   the Growing Vaccine Crisis
   By Paul A. Offit, MD, Yale University Press; $27.50

 

·  Chronic Pain and the Family:  A New Guide by Julie K. Silver
   Harvard University Press; $11.48

 

·  Lucky One:  Making It Past Polio and Despair by Richard      

   Maus
   Anterior Publishing; $19.95

 

·  Disease: A Personal and Cultural History of Polio by Anne  

   Finger.
   Through the eyes of a polio survivor, this book focuses on    

   the experience of people who had the disease, and explores        discrimination; the disability rights movement and casts a

   critical eye on medical treatment.
   St,. Martin's Press; $17.91; Can also be purchased online  

   at Powell's City of Books

 

·  Warm Springs:  Traces of a Childhood at FDR’s Polio Haven       

   by Susan Richards Shreve.  A memoir of an era by a patient at  

   Warm Springs at the height of the polio epidemic.

 

·  Through the Storm:  A Polio Story by Robert F. Hall
   Beaver’s Pond Press  Available on Amazon

 

·  Sucking Air:  Doing Wheelies:  Memories of a Fifties Polio

   Survivor by Robert Mauro Available on Amazon
 

·  Behind Enemy Lines:  A Memoir by John Durand
   Available on Amazon

 

·  The Fortune Teller’s Kiss by Brenda Serotte Available on Amazon

·  Managing Post-Polio by Lauro Halstead, M.D. NRh Press;      

   Available through Vandamere Press,   and Amazon

   or by calling LaShonne Williams-Fraley at 202 877 1010.

 

·  Love, War, & Polio: The Life and Times of Young Bill Porteous by    

   Timothy Bizzett. Available from Amazon

Tel: 404-350-7631

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