Resource Center
Shepherd Center in Atlanta---- A local institution with a PPS clinic. Also noted for strong support of APPA
Rehabilitation Medicine at the Emory University School of Medicine headed by Dr. David Burke
International Post-Polio Support www.ippso-world.org/
Post-Polio Health International: www.post-polio.org
Access Now: www.adaaccessnow.org
American Association of People with Disabilities (AAPD): www.aapd.com
Medline Plus (Polio and Post-Polio Syndrome)
www.nlm.nih.gov/medlineplus/polioandpostpoliosyndrome.html]
Mayo Clinic (Post-Polio Syndrome) www.mayoclinic.com/health/post-polio-syndrome/DS00494
Southern Arizona Post-Polio Support Group newsletter:www.polioepic.org and www.polioecho.org
www.postpoliobransongoers.com Annual trip to Branson, Missouri!
http://www.georgiaadrc.com/ - Georgia's Aging and Disability Resource Center
Atlanta area agency on aging. Resources for transportation, housing, in-home help, and more.
http://www.aadd.org/ and http://www.unlockthewaitinglists.com/ - Atlanta Alliance on Developmental Disabilities
http://www.1gooddeed.org/ - One Good Deed - transportation and mobility aids
Atlanta Regional Commission A georgia government site with info and links to agencies, programs and assistance
There are a number of Facebook pages related to PPS. If you type Polio in the Search book, it will list all the pages. Here are two:
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http://poliotoday.org/ - has a Facebook page as well
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FB page: Post-polio syndrome
Center for Independent Living (CIL) - www.silcga.org
Pat Puckett, Executive Director, 770-270-6860
World Institute for Disability - http://wid.org/
Social Security Disability Resource Center -http://www.ssdrc.com/
Statewide Independent Council of Georgia (information in English and Spanish);
http://www.postpolio.wordpress.com (newsletters from Boca Area in Florida post polio group);
http://www.polionetwork.org (has new email address info@polionetwork.org);
GPEI (polioeradication.org);
post-polio.org (Late Effects of Polio from PHI)
youtube.com/PolioAustraliaInc (Late Effects of Polio- Videos)
What are the Main Symptoms of Post-Polio
Dr. Marny Eulberg’s Articles and Videos are in the “Primary Care Perspective” section: www.polionetwork.org/eulberg website. Dr. Eulberg is a polio survivor (Class of 1950) who addresses polio-related issues and remedies.
Bookshelf
The following books can be purchased at Amazon.com
· Polio: An American Story by David M. Oshinsky
***Winner of the 2006 Pulitzer Prize in History***
Published by Oxford University Press; $18.90
· Living with Polio: The Epidemic and Its Survivors
By Daniel J. Wilson; $18.27
· Splendid Solution: Jonas Salk and the Conquest of Polio
By Jeffrey Kluger; $10.38
· Polio and Its Aftermath: The Paralysis of Culture
By Marc Shell; $30.77
· Walking Fingers: The Story of Polio and Those Who Lived It
By Helen D’Orazio; $12.32
· Polio: A Dose of the Refiner’s Fire: Surviving Polio
By Jeane Curey Dille; $12.95
· The Cutter Incident: How America’s First Polio Vaccine Led to
the Growing Vaccine Crisis
By Paul A. Offit, MD, Yale University Press; $27.50
· Chronic Pain and the Family: A New Guide by Julie K. Silver
Harvard University Press; $11.48
· Lucky One: Making It Past Polio and Despair by Richard
Maus
Anterior Publishing; $19.95
· Disease: A Personal and Cultural History of Polio by Anne
Finger.
Through the eyes of a polio survivor, this book focuses on
the experience of people who had the disease, and explores discrimination; the disability rights movement and casts a
critical eye on medical treatment.
St,. Martin's Press; $17.91; Can also be purchased online
· Warm Springs: Traces of a Childhood at FDR’s Polio Haven
by Susan Richards Shreve. A memoir of an era by a patient at
Warm Springs at the height of the polio epidemic.
· Through the Storm: A Polio Story by Robert F. Hall
Beaver’s Pond Press Available on Amazon
· Sucking Air: Doing Wheelies: Memories of a Fifties Polio
Survivor by Robert Mauro Available on Amazon
· Behind Enemy Lines: A Memoir by John Durand
Available on Amazon
· The Fortune Teller’s Kiss by Brenda Serotte Available on Amazon
· Managing Post-Polio by Lauro Halstead, M.D. NRh Press;
Available through Vandamere Press, and Amazon
or by calling LaShonne Williams-Fraley at 202 877 1010.
· Love, War, & Polio: The Life and Times of Young Bill Porteous by
Timothy Bizzett. Available from Amazon
· S.O.S--Save Our Shoulders: A Guide for Polio Survivors: https://post-polio.org/wp-content/uploads/2020/01/Save-Our-Shoulders.pdf